British Fibroid Trust Woman2Woman Fibroid Support Fibroids: Patient Guide
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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
Signature No. Petitioner Locality Opinions
2012.  K.S Basildon I have just been told I have fibroids for a second time. I had novasure treatment in 2008 .i also have a 14.9 ml thick endometrium. Taking lots of pills iron for anemia and tranexamic acid for bleeding. Have had to stop working, feel tired and useless.women with this condition need help and support.
2011.  R.W Leeds I was diagnosed 5 years ago and never offered any treatment and have lived with the pain and discomfort. The increase in pain over the last year l sought another scan this has not shown any change in my original diagnosis. I feel that I have not been offered all the options or any support from my GP this needs to change so it doesn't have such an impact on women's lives:
2010.  G.T Reigate I believe there is not enough research into fibroids and not enough information available through the NHS. Fibroids and heavy periods can affect women\\\'s working life - heavy periods have affected my ability to be office based at times and I know I am not alone., several friends of mine also have to work from home at times due to this
2009.  D.A Fleckney I've suffered for years with pain thinking that I was just going through 1 St stages of the menopause and that I had to just get on with it. Turns out I had fibroids and polyps only my persistence got me operated on . Very very upset it took so long to be believed and that I wasn't making the whole thing up.
2008.  N.B Horley Following a miscarriage earlier this year, it was discovered that I had a large (13cm) Fibroid. Although i'm told that the Fibroid had nothing to do with the miscarriage (the fibroid will make me uncomfortable and cause me pain during pregnancy, but no reason why I can't carry a baby) The (male) specialist I have seen has been brilliant - clearly explaining my options - at 32 with no children a Myomectomy is not ideal as it may lead to a Hysterectomy. Uterine Embolisation also seems unlikely for me at this as it can make you infertile. I've been told to continue trying for a baby & reassured that I'll be looked after during pregnancy. However, I've been told that within the next 10 years, I will have to have the Fibroid removed. My periods are a nightmare, but have been prescribed medication to reduce the bleeding. Very worried that the Fibroid my hinder me falling pregnant or that I fall pregnant, I miscarry again and the Fibroid continues to grow. Hard to stay positive. I feel awful for those women who have not been given good advice. There definitely needs to be more awareness & a better understanding of Fibroids by Doctors etc.
2007.  L.A Stratford
2006.  C.J Skelmersdale I have just been referred to a gynecologist who said I need a hysterectomy because I have a very large fibroid which is causing me no end of problems, but after researching the Web have seen there are lots of alternative treatmentshould..why so drastic invasion such as a hysterectomy with horrendous side effects?
2005.  S.V GRAYS
2004.  A.T Carlisle
2003.  N.M Ross on wye I had miscarriage which was almost certainly due to fibroids. I paid privately to have them removed and within 4 months I was pregnant and carried twins full term. They are now 2 years old and my pain started again, heavy agonising periods so I wasn't surprised after an ultrasound to discover I had a large fibroid again. What causes these. More research needs to be done!!!
2002.  T.W Bristol
2001.  H.O Carville Durham I have melon size fibroid tbat causes me much pain and discomfort but find it hard to sort it,scared of being in need after opp as I have no family after opp
2000.  L.M Shirley
1999.  L.M Melton Constable I suffer from A particular type of Fibroid which is causing me daily problems however I have been frightened off by my Gynecologist. It took me a long time to even get to see one and now I feel they are not taking my problems seriously. More support and research is definitely needed in order to improve women's health so we can keep working.
1998.  C.R Caernarfon I find attitudes to be very dismissive towards fibroids - but realistically how healthy is it to carry something the size of a melon inside of you - sometimes even larger than that even! Most doctors jump on to the bandwagon of hysterectomy without looking at other options. Needs further research and also doctors need to be educated!
1997.  J.B Whitchurch
1996.  L.H Manchester
1995.  A.S London
1994.  E.A London
1993.  J.H North tuddenham Common condition causing much pain, more research needed into effective treatments.
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