British Fibroid Trust Woman2Woman Fibroid Support Fibroids: Patient Guide
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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
Signature No. Petitioner Locality Opinions
654.  C.B Thelwall Reading all the stories on the site, tells me that I am one of the lucky one who was not let down by her GP. However, my referral to the wonderful surgeon who gave me my life back took 18 months, during which I was admitted to A&E for blood transfusion on several occasions. Why does it take that long?? This creepling condition has to be taken seriously right from the beginning!
653.  L.A Crawley
652.  F London I have suffered for over 18 years, passing out from chronic pain, heavy periods, miscarriages, passing blood clots, total incapacitation where i can not move or do anything for myself... but all i was ever given were pain killers and advice that it will go away sometime, then one night i was taken to A&E, unconcious and when i came to the Dr found out the cause, ordered for my hospital file and booked me in for an emergency myomectomy( my abdomen was equivalent to a seven month pregnancy). this was carried out two days later and was well for some time, but as i was suffering from secondary infertility (been pregnant before but have had no kids because of miscarriages)i somehow had regrowth of the fibroids.i toiled on with pain killers until my Dr eventually refeffered me back to hospital Gynea. consultant arranged US scan, MRI scan then booked me in for an operative laparoscopy this weekend. Fingers crossed, it will help this time as i am fedup of the pain, suffering and all the painkillers. All along i've been told to agree to hysterectomy although i just turned 43 last month (July). Social workers and uni lecturers and many others have all laughed it off as it not being a disabling illness, Alas.. what do they know . More awareness is needed to alert the general public that there are some of us who suffer chronically whereas others ill never even know that they have fibroids- as they will be just like (carriers o a disease- who are never affected by it)..
651.  V.W Nottingham I am 51, this condition began a year ago and it is becoming increasing more pain and uncomfortable. It comes and goes I attend both British Doctors and the USA doctors. I started menopause at47 and my UK doctor says no HRT I only have one more year to go??? So why now with fibroids. I used to get Bio identical Hormones treatment in the USA 33 bottles of bloods taken for a full account of my body and the Bio creams made in Dallas TX, This was requested by a Dr Parker in Virgina Beach VA. BIO IDENTICAL treatment is class as going to a with doctor in the USA they are not proven. The best books around are the Susan Summers books for info. More research is needed with the help of people like Dr Parker. BILL Gates, mother attends his clinic to see him.I just wish the USA an the UK could work together on their client bases, for research.
650.  S.L Rotherhithe Research absolutely essential by dr/gaenocologist who should encourage patient participation & help lobby govt.
649.  T.S London I was diagnosed with fibroids in 2000 and is a condition that is excrutiatingly painful that hinders the quality of life. More research is needed now!
648.  H.M Glasgow
647.  T.G Penarth
646.  A.S London
645.  J.D Doncaster
644.  S.H Harrow Tomorrow I am facing a myomectomy, which I don't want but due to lack of support and Information i feel forced into this option. More Research is needed so more treatment options are available to women
643.  M.A Entebbe
642.  L.O Milton keynes
641.  D.D Middlesex
640.  K.J Swansea
639.  E.B Greenford I have had two operations. First in 2003 and then again in 2006 and the fibroids are back which means I now face yet another operation. Please please please can you put more into research. This would save the NHS money as giving so many women endless operations and hysterctomies becomes a bottomless pit. Not to mention the relief to millions of woman.
638.  M.A.W.B Burton on trent At the age of 64 I had a transvaginal scan yesterday. I have fibroids. after the scan I went to get my clothes on, the consultant radiologist had gone. I have had no advice or further information of my options. Further reserch needs to be done, also education for the medical proffession.
636.  L.A Leicester
635.  S.T Smethwick I had a myomectomy in 2009 and now I'm faced with the same issue in 2011! I really need more credible options than hysterectomy. There needs to be more research into the causes especially as it's so common. There would be plenty of participants to study. I support this fight to get more research done.
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