Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
||I'm also suffering from fibroid and am looking for the best option to remove it.|
||I have had this problem for the
past 5 years and words can not
explain the pain and discomfort
it has had no my life|
||There needs to be a standard medical response when a woman first complains of troublesome fibroid-like symptoms or when a fibroid is diagnosed with a scan. An early diagnosis is vital so that a fibroid can be discovered when it’s small and more manageable. At the outset, a woman diagnosed with a troublesome fibroid should be fully informed of all possible treatments and scenarios – fibroids can stay the same size, they can naturally shrink back, or they can grow – and in some cases grow extremely large – so that an informed choice can be made as to the best course of treatment. In addition, once a troublesome fibroid is detected, a GP referral to a gynaecologist should be standard practice. The fibroid should also be regularly monitored and scanned to check for rapid growth. I had a small fibroid which ballooned in the space of 2 years and 8 months and is now the size of a melon. During this time, not once was I offered a scan in between to check for growth or a consultant referral. Between my first and second scan, my fibroid was allowed to grow and grow and now my treatment options are basically limited to a hysterectomy, or I can ride it out to my menopause which might be five or more years away, during which time my fibroid could continue to grow. The IUS which I had fitted has barely made a dent to my horrendous menstrual cycle. GPs should also be fully educated about all treatment options and scenarios. It is shocking to read comments from so many women who’ve signed this petition that the only treatment they’ve been offered was a hysterectomy when there are other options available, ranging from drug therapy to other surgical interventions. A hysterectomy is the most radical of all treatments – irreversible forever preventing pregnancy – and it should be only be offered as a treatment of the last resort. Although fibroids are non-malignant their impact on a woman’s health and quality of life is NOT benign – excessive menstrual bleeding which restricts a woman’s life, anaemia, weak bladder and pelvic pain and pressure are just a few of the symptoms. Fibroids affect one in five women in the UK and account for 20 per cent of Gynae consultations. It would cost the NHS far less if fibroids were detected early and managed and treated when they’re small. If only for this reason, fibroids (and their symptoms) should be taken more seriously and the medical response to this health condition should be systematic. Finally, and equally important, more money should be invested in research on the causes of fibroid growth so that therapies can be developed to treat them more effectively.|
||Personally i dont think GP is doing enough to help their patient, i notice i have fibroid when i was 30 and i was in and out of GP surgery nothing was done no help offered, when i reached 40 the only advice and only option was hysterectomy which i refused, the my son pass away at the age of 18 four years ago and so is my symptom, from me being under so much stress so did my stress got worst, the worst it get the more pressure i had for my uterus to be removed. so i deciede to go to my gp after my last hospital appointment with sever anemia and 8 pint of blood transfussion to be refered to other hospital for embolisation but the first thing offered is hysterectomy, with none of my involvment in the discussion and then i told the doctor the only thing i want is UAE. after going back and forth i was told it will take three mont i told them i will wait. i think more neede to be done to educate all the doctors that women womb is not a pieces of meat to be wisked out and thrown away. i think more needed to be done with regards to Fibroid and treatment|
||I am scheduled for
myomectomy operation on
coming 8th February 2011.
My doc said, if there\\\\\\\'s
loss happen during the
operation, she might have to
perform hysterectomy since im
anemic and large fibroid
(12cm) and i can feel it growing
bigger and bigger.
I am not married yet. I wish to
have kids one day. it is really
worry me when the doc said
Beside that, i know
there\\\\\\\'s a risk of fibroid
recurrence after myomectomy.
i want to know how to prevent
from new ones to form.|
||Research would be a great help in improving the outcome of this condition I'm 29yrs old and it has severely affected my life and my future.|
||I was frightened when I found the lump, now I've seen the doctors I'm confussed about which treatment and this condition is so common - we need more research|
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