Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
||I am shocked at how fast fibroids can grow, i had an ablation in my womb and after 15 months i now have a large 12cm x 10cm x 7cm alien in my body!!|
||Having suffered for many years with fibroids I insisted to my GP that I be referred to see a Gynaecologist rather than try drugs, the Mirena coil etc. My consultant recommended an ablation, which did work for a short time, however, I went back to see her again after 6 months and had an MRI scan. This showed a large fibroid which was treated with a Uterine Arterial Ablation via an Interventional Radiologist, who is a specialist in the treatment of fibroids. This worked for 3 years but now I am back to square one and due to have a fibroid resection carried out next week, having been advised by my consultant that a hysterectomy was the only solution. I was adamant that there must be another option, hence the resection. I am hoping it works this time, as at 45 I don't really want to have a full hysterectomy as a single working parent. More research needs to be carried out to look at the link between diet and fibroids, as an alternative to the drug therapies that are offered to treat the condition in the early stages.|
||Just been diagnosed, can\'t
afford time off for
hysterectomy, hope I have other
||I have fibroids. The only treatment I
was offered was a removal of my
womb. This upset me as I know there
are other treatments available , but
we\'re not offered.Im 48 now and may
be they will shrink when I go though
the menapause.I am prepared to put
up with painful periods.|
||New to Fibroids so no opinion as yet.|
||I have suffered with the condition of fibroids for over 16 years. It has caused the death of my children as the fibroid pushed against the evolving foetus, precipitating spontaneous termination of their lives.
Latterly, the fibroids have produced symptoms which are painful and the size of myomas is extremely large. Surgeons have told me that it is now risky to consider removal as they are too large. However, when they were small, I was told that they were not large enough to remove as they would simply grow back.
They now measure approx. 25.8cm x 15.8 cm x 23cm, which equates to 9375 cc. The estimated weight of these non-cancerous tumours is 1.5 stones (9.5 kilos). This is after one UAE.
This additional weight must put stress on my heart as is it like carrying a sack of potatoes everywhere!
I wonder how many doctors or politicians would allow their family members to undergo such continued misery, pain and discomforture. I estimate that the number would be very low.
I run my own business and it would be comforting to think that my health was robust, rather than having to worry about possible side effects and painful symptoms whilst I am working.
It would make sense to me, to understand early treatments which are available and research in how to deal with this condition in a timely manner.
The alternative to such a reasonable request, is to perpetrate a higher level of absence from work for many sufferers; higher costs for the NHS at later stages; a diminished quality of life for patients, which is contrary to the expectations of taxpayers.
If I have to fund a surgical procedure privately, I will take legal action to recover my costs.|
||I have recently been diagnosed with fiboids, as a result of symptoms affecting my way of life. I have already been to 2 different hospitals and have only been offered contraceptives that'll 'cover up' some of the symptoms! I want children at some point in my life, so contraception isn't the bnest option for me. why haven't I been offered treatment for the fiboids!? more research need to happen, and medical professionals need to be made aware of ALL the options available. If this isn't sorted longterm, it could affect my career as I'm medically downgraded and not able to do what I signed up to do. MORE NEEDS TO BE DONE TO HELP WOMEN WITH FIBROIDS!|
||Research is really needed for
fibroids. I appreciate that
the internet is available, so
I, as a sufferer can get and
gain access to the information
that is needed. However, not
everyone has access to the
internet, thus it is important
that research should become a
reality so that all women who
are sufferers from fibroids
can fairly access the
information whenever they come|
||I have just been diagnosed
with fibroids 1 large and 1
smaller, I have suffered pain
for up to 8 years and thought
it was just a hormonal thing
(now aged 48) now I can
hardly move with the back and
pelvic pain! The Doctors are
absolutely rubbish and all
they want to do is either give
you the pill or merina - which
they have talked me into 3
times now!! Only to cause me
more pain and suffering ANY
woman who has painful periods
should be able to have a scan
to see if fibroids are the
issue and Drs should stop
throwing these so called
alternatives at us - I never
knew how painful and
depressing they could be and
how much effect they can have
on your daily life!|
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