British Fibroid Trust Woman2Woman Fibroid Support Fibroids: Patient Guide
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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
Signature No. Petitioner Locality Opinions
2117.  D.G Necton
2116.  E.O Sevenoaks
2115.  K.O Sevenoaks More research needed! Disgraceful lack of treatment and options considering how many women are affected.
2114.  C.B BRISTOL I have a friend who is immense pain with this..i have just been diagnosed with a small so say 7mm but i'm sure they measure in cm no mm..and i'm still getting pain and tird all the time and i'm older with a young son..i'm not lazy but feel ill all the time and expected to go back to work in two months time when my boy is 5...i physically struggle..i'm a single mum and no one understands ..i just wish more was done to help with this..the doctors don't understand and think we are complaining and then trying to find out what is wrong..and i'm chasing it all to get answers.
2113.  L.M LONDON
2112.  R.S Sheffield I have seen firsthand the horrible symptoms of fibroids, and the negative effects it has on work, relationships and life in general. It seems difficult to find a sympathetic or knowledgable doctor, and my partner has been waiting a long time to see a consultant in Sheffield. Her GP recently advised her that the NHS Gynae dept has 'some issues' and to 'go private' which I thought was shocking and sad. Why isn't good treatment/service available on the NHS, which we have both paid into all our lives?
2111.  G.S Leeds
2110.  E.N Cambridge I wish a champion member of parliament could visit London St Marys Hospital fibroid clinic to hear stories from BME women who are the most affected by fibroids about their fears of never having a child or having their uterus removed. Leaders should put fibroids as a top agenda!
2109.  O.O Newcastle upon Tyne
2108.  C.R Stratford upon Avon There is not enough support,not enough recognition, not enough understanding of the suffering, pain and total lifestyle change you have to make. I\'ve been told that I\'m depressed when I\'ve been extremely anemia. I\'ve been dismissed and told that womans bodies just go crazy sometimes!
2107.  N.K West Midlands 1st case I had was in 2008 but at the time A&E convinced me it was IBS and sent me home advising I take paracetamol. Looking back I know what it was now as I had a worse experience this 03/16 and found I have loads of fibroids with the largest being 12 x 11cm along with an enlarged womb as a result. I felt under pressure to convince the NHS I felt better when admitted in order to be discharged from their care to avoid a hysterectomy (NHS genuinely provided great care by the way!)I was fortunate enough to go privately instead and have learned far more about my condition and options (private care provides the luxury of time with medical staff). My point is whilst in hospital for that week I was shocked by the volume of women in our boat and having hysterectomies daily of all ages and persuasions!!! I am proud of our NHS and fully support them but more research is definitely needed.
2106.  R.E Boness
2105.  A.S Oxford We need more research on Fibroids
2104.  B.D London We need more research into this area. Words cannot express the excruciating pain,loss of blood,the need of a blood transfusion and copious amounts of medicine I have been taking to control the symptoms. We need more detailed research into this condition.
2103.  L.D Dundee
2102.  L.S Leicester
2101.  J.R Norwich
2100.  L.A.R.A Dromore I'm a tax contributing fulltime worker, looking at repeated absences and a potential 6-8wk recovery time worst case scenario on a hysterectomy. Add to that the hospital etc costs of such an extreme treatment. The costs of research for better diagnosis and earlier less invasive treatment would pay for themselves in the medium to long term.
2099.  K.P Worcester Park I want to know whether I could have avoided getting fibroids when I was younger.
2098.  N.H Watford I have suffered from fibroids for 15 months; first taking esyema but now referred to local hospital and waiting for second appointment; in the meantime, I am told by my doctor that i look about 5 months pregnant but thankfully apart from a hideously bloated stomach there are no other problems so far
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