Signature No. |
Petitioner |
Locality |
Opinions |
244. |
M.H |
Leeds
| I am in the process of having a myomectiomy open surgery. i am 27 yrs old and previusly had no idea about this condition and all the research i have done and what the doctors told me is that this is an older persons illness. i think youger people need to have ultrasound testing so that they dont have to have such an invasive surgery especially before having children as it can potentially effect you.there is also the possibility of having to have hysterectomy which is very upsetting for a young woman. i found it stressful as i have no children. |
243. |
S.H |
Kingston Upon Thames
| |
242. |
N.K |
Edinburgh
| Having been diagnosed with fibroids since 2006, I am still trying to decide on my options and believe better guidance and more research should be done |
241. |
S.A |
London
| |
240. |
G.A |
London
| My large fibroids are making my life hell and after causing me such intense pain that caused contractions and a late miscarriage, I want to know when I will ever feel normal again. Any research that can support prevention or non-surgical cure I fully support. |
239. |
S.B |
Ramsgate
| |
238. |
D.J |
Weymouth
| |
237. |
A.H |
Fareham
| |
236. |
S.B |
London
| |
235. |
J.C |
Prees
| |
234. |
M..O |
Gillingham - Kent
| As a long term sufferer of fibroid, I fully support that more effort be put in the research for the fibroid and a permanent cure found. |
233. |
L.L |
London
| |
232. |
A.L |
Plymouth
| |
231. |
G.S |
Gloucester
| |
230. |
K.(.J |
Ashton-under-Lyne
| I first had a ovarian cyst in 2005 op and still not pregnant and low and behold i now have Fibroids but i still trying before it's too late. |
229. |
G.G |
Sale
| Treatment options need to be made available to the patients throughout their treatment - we would not be looking at these websites if we felt we were being given all our options with their side effects discussed honestly throughout. |
228. |
J.C |
Stoke-on-trent
| |
227. |
L.W |
Leicester
| I have recently recovered from a myomectomy, after years off misery and ill health, which was misdiagnosed as "its your age" (hb of 6 by final diagnose of fibroids).I then had the misfortune of being referred to a consultant who only overs hysterectomies!!!
Not accepting this i requested a second opinion and finally found a consultant who was willing to give me a myomectomy to retain by uterus!!! Am now recovering but feel more support and research is needed in this area - I fought for my treatment but how many women actually question the their treatment.
Many times I did think how my treatment might have differed if I was paying for my treatment! Fibroids effect millions of women, resulting in time off work, depression and fatigue - most of these women carry on because they are working women, mothers, keeping the family home going and do not have time to moan -they just cope!!! I also ponder on how different it would all be - if men had uterine fibroids!! Sorry to be cynical but 3 years of fighting for my treatment on the nhs (as a very high taxpayer) has taken its toll.
My advice would be to "step away from the table and get a second opinion". |
226. |
A.J |
Brighton
| Having had fibroids for at least the past 10 years at the age of 54 they are still growing. I am battling with the medical opinions and this afternoon have an appointment when I will be insisting on a referal to at least talk to a radioligist who performs embolization to then be able to evaluate for myself another option available, apart from hysterectomy which I have been resisting for the past year. Waiting for referals seems such a waste of time. I am now on my third gynaecolgist as they are so narrow minded. |
225. |
C.L |
London
| I am astounded that such the NHS is
still offering such invasive surgery as
the ONLY option to thousands of
women. There are alternative
treatments out there that should be
readily available to every patient.
Either some of the medical profession
is ignorant to what is available or there
simpy isn't enough funding to make
alternative treatments available.
However wouldn't it far more cost
effective if the NHS only had a patient
take up a bed for 2 days( with UAE) as
a opposed to 2 weeks ( myomectomy)?
It doesn't make sense. |