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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
Signature No. Petitioner Locality Opinions
749.  C.P Chipping campden I am diagnosed with fibroids last week. The gyneacologist send me a letter with the diagnose and only treatment option: hystorectomy. No further appointment to talk options through nothing, just two lines. This is not right! I still have the expectancy to become pregnant even though I am over 40.
748.  T.P London
747.  L.T Kelty
746.  E.R Efail Isaf I would like to see more research done around the risk of post partum haemorrhage for women with fibroids.Midwives and consultants seem to insist on putting women into a "high risk" category when a fibroid is picked up on the scan but there seems to be scant evidence to back up the commonly cited risk of pph.
745.  A.C London
743.  C Herne bay
742.  K.M Belfast I have suffered from constant discomfort from large fibroids for a few years. They caused complications during pregnancies, and now with a mirena coil fitted 8 months ago I amd still having heavy period every 2 weeks at least. I am low in energy, constant light headedness and probably very anemic. I still look and feel pregnant. I would love there to be more research and action to help people suffering from fibroids.
741.  S.P Poole
740.  A Slough I couldn't agree more. Further research is needed. After several years of heavy periods, a hysteroscopy and the grim discovery that I can no longer have children I can honestly say that Fibroids have ruined my life. I am now, at the age of 40, contemplating what options are left for me in terms of dealing with this condition. I feel completely abandoned by the medical services in terms of my options.
739.  S.H Leicester Over the last year and a half of having significant but evolving problems with fibroids I've been stunned at the lack of knowledge, the haphazard way I've been treated, the fact I've not been informed of my treatment options and the difficulties I've had getting access to those treatments now that I know about them. This condition affects most parts of most days in some way and is treated as virtually irrelevant by the people I have seen. I'm still in the middle of trying to get an appointment with a specialist, a process which has taken 12 weeks so far (despite me calling the surgery most days and even contacting my MP at one point) and I STILL do not have an appointment set up. It beggars belief!!! So, not only is the condition difficult, the amount of knowledge about it pitiful and difficult to access and the treatment options hard to assess and access but the system seems to conspire against one to make it all hundreds of times as hard as it needs to be. Very fed up indeed!
738.  H.J Oswestry
735.  N.G London
734.  V.P Birmingham
733.  M Slough More reseach and early treatment
732.  S.G Louth Just discovered when having an MRI scan of the lower spine that I still have fibroids at the age of 67. I assumed they would have shrunk after I ceased taking HRT 10 years ago. Apparently that is a myth.
731.  S.L Edinburgh I would welcome any research into this as all the women, including myself have suffered greatly from this, it affects your quality of life and has at times disabled me completely.
730.  A.A Sudbury Really shocked by how little my doctor knew. Was treated as though it is normal to have fibroids.
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