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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
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Signature No. |
Petitioner |
Locality |
Opinions |
2149. |
C |
Bristol
| Yes not enough consideration or serious thought is given to Women suffering with Fibroids and all gynaecological problems. My quality of life has been ruined due to fibroids and also late diagnoses of primary ovarian insufficiency. I was finally diagnosed with both conditions after 10 years of going to numerous doctors and gynaecologists. However I was still not given any treatment, help or support and just sent away to get on with it. I suffered with a fibroid causing me much pain and discomfort for 4 years before having it removed. Unfortunately I have now been left with adhesions so now waiting to have these operated on, whilst still waiting and wondering if I will ever have my quality of life back and any chance of ever having a child of our own. |
2148. |
A.H |
Petersfield
| Chronic condition that once causes
symptoms leads to poor quality of
life. Hysterctomy was my ultimate
final option and given the rest of the
options which seemed only
temporary I decided to go ahead with
sub total hyst for my condition . This
has lead to a very long recovery time
and will be min of 8 weeks off work
which is career changing !! I am
furious after all this time that
treatments available are so negative
with poor long term success rates.
Fibroids run in my family with my
mother having hysterectomy , now
me and my sister now having to.
Same treatment offered to my mum
nearly 40 years ago!! We have
daughters and they are scared of the
same fate. Research into new less
evasive successful treatments and
priority to prevention would be very
much welcomed. Though not usually
life threatening, complications are
numerous for many and quality if life
is very much impacted. Spending
your time exhausted through blood
loss , in pain and planning your life
around a toilet is no fun for anyone
with this benign condition. It affects
every aspect of your life!! |
2147. |
M.M |
London (United Kingdom)
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2146. |
D |
Barrow in Furness
| |
2145. |
H.M |
Carnforth
| |
2144. |
S.S |
Bristol
| |
2143. |
E.R |
Cardiff
| |
2142. |
A.M |
Truro
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2141. |
N.W |
Burton upon Trent
| |
2140. |
P.P |
Twickenham
| |
2139. |
P.M |
Wakefield
| I have had fibroids for 10 years, at first
they just made life awkward at times.
Now they are controlling my life and i
am considering surgery. Thousands of
women deserve more information and
treatment of this debilitating condition. |
2138. |
D.G |
Elland
| |
2137. |
M.C |
Daventry
| Before my fibroid was finally
diagnosed, I was told by my GP that I
have irritable bowel and then when I
went back with my pain and heavy
bleeding, that I was going through the
menopause. Eventually, a scan
showed the fibroid, I suffer bad back
pain, especially at night, I have
queried if this could be pressure from
fibroid. I have had 6 months of
GNRH, which should shrink the
fibroid, but my continues to grow! So
now I have been advised that there is
a slight risk that it could be malignant.
I am having a hysterectomy, which I
have had to push for. I am
exhausted, scared and fed up of the
pain. Fibroids have ruined the quality
of my life for the past 5-years. Earlier
diagnosis and treatment is essential,
for such a common problem. |
2136. |
D.Q |
Brooklyn, NY
| |
2135. |
L.R |
Sarn
| |
2134. |
P.S |
Belfast
| |
2133. |
L.N |
Northfield
| More research into
causes,detection and treatments
for fibroids is needed. My
symptoms have been making my
life miserable for over 2
years. I have only just been
referred to a gynaecologist. |
2132. |
S.A |
Ely
| It makes my blood boil that
as a long term fibroid
sufferer the only
alternative treatment to a
hysterectomy I was offered
was the Mirena coil, which I
'lost' after three years of
making my symptoms even
worse, including huge blood
clots and hair loss. A lot
more research is required to
determine the causes of
fibroid and offer more non-
invasive treatment options.
I have come to the end of my
tether now and am completely
exhausted and now even
considering a hysterectomy
to bring an end 15 years of
extremely painful and heavy
periods. |
2131. |
P.H |
Denbigh
| |
2130. |
M.P |
Brighton
| If fybroids affected men we wouldn't
need a petition |
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