British Fibroid Trust Woman2Woman Fibroid Support Fibroids: Patient Guide
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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
Signature No. Petitioner Locality Opinions
1017.  K.P Datchet
1016.  S.T Westwoodside
1015.  D.S London
1014.  R.P South croydon
1013.  M.M Buckie
1012.  P.A Sittingbourne
1011.  S.J Wrexham
1010.  S.O Scarrington I am shocked at how fast fibroids can grow, i had an ablation in my womb and after 15 months i now have a large 12cm x 10cm x 7cm alien in my body!!
1009.  M.D Windlesham Having suffered for many years with fibroids I insisted to my GP that I be referred to see a Gynaecologist rather than try drugs, the Mirena coil etc. My consultant recommended an ablation, which did work for a short time, however, I went back to see her again after 6 months and had an MRI scan. This showed a large fibroid which was treated with a Uterine Arterial Ablation via an Interventional Radiologist, who is a specialist in the treatment of fibroids. This worked for 3 years but now I am back to square one and due to have a fibroid resection carried out next week, having been advised by my consultant that a hysterectomy was the only solution. I was adamant that there must be another option, hence the resection. I am hoping it works this time, as at 45 I don't really want to have a full hysterectomy as a single working parent. More research needs to be carried out to look at the link between diet and fibroids, as an alternative to the drug therapies that are offered to treat the condition in the early stages.
1008.  I.N London
1007.  N.H Bromsgrove
1006.  A.H Marsden, Huddersfield Just been diagnosed, can\'t afford time off for hysterectomy, hope I have other options
1005.  C.B Willenhall Westmidlands I have fibroids. The only treatment I was offered was a removal of my womb. This upset me as I know there are other treatments available , but we\'re not offered.Im 48 now and may be they will shrink when I go though the menapause.I am prepared to put up with painful periods.
1004.  S.M Northolt London
1003.  A.A Manchester
1002.  P.P Bingley
1001.  S.E Boston New to Fibroids so no opinion as yet.
1000.  A.G Chessington I have suffered with the condition of fibroids for over 16 years. It has caused the death of my children as the fibroid pushed against the evolving foetus, precipitating spontaneous termination of their lives. Latterly, the fibroids have produced symptoms which are painful and the size of myomas is extremely large. Surgeons have told me that it is now risky to consider removal as they are too large. However, when they were small, I was told that they were not large enough to remove as they would simply grow back. They now measure approx. 25.8cm x 15.8 cm x 23cm, which equates to 9375 cc. The estimated weight of these non-cancerous tumours is 1.5 stones (9.5 kilos). This is after one UAE. This additional weight must put stress on my heart as is it like carrying a sack of potatoes everywhere! I wonder how many doctors or politicians would allow their family members to undergo such continued misery, pain and discomforture. I estimate that the number would be very low. I run my own business and it would be comforting to think that my health was robust, rather than having to worry about possible side effects and painful symptoms whilst I am working. It would make sense to me, to understand early treatments which are available and research in how to deal with this condition in a timely manner. The alternative to such a reasonable request, is to perpetrate a higher level of absence from work for many sufferers; higher costs for the NHS at later stages; a diminished quality of life for patients, which is contrary to the expectations of taxpayers. If I have to fund a surgical procedure privately, I will take legal action to recover my costs.
999.  K.K Edinburgh
998.  M.B Devon I have recently been diagnosed with fiboids, as a result of symptoms affecting my way of life. I have already been to 2 different hospitals and have only been offered contraceptives that'll 'cover up' some of the symptoms! I want children at some point in my life, so contraception isn't the bnest option for me. why haven't I been offered treatment for the fiboids!? more research need to happen, and medical professionals need to be made aware of ALL the options available. If this isn't sorted longterm, it could affect my career as I'm medically downgraded and not able to do what I signed up to do. MORE NEEDS TO BE DONE TO HELP WOMEN WITH FIBROIDS!
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