Signature No. |
Petitioner |
Locality |
Opinions |
1309. |
L |
Edinburgh
| Really poor service from NHS so far. Totally clueless |
1308. |
S.F |
Leeds
| |
1307. |
T.W |
Mansfield
| |
1306. |
E |
Bristol
| I suffered from horrendous periods
throughout my 20s and repeated
doctor\'s appointments yielded no
attempt at any investigation. At the
age of 31, finally my GP examined me
to find a very large fibroid. The
decision to have a myomectomy before
you\'ve had children is the most
difficult one I\'ve had to make.
Unfortunately after one miscarriage
and the fibroid increasing in size I now
have no choice. I have faith in my
consultant, but I feel sad that she\'s
the
only one who has really taken this
seriously and informed me (in an un-
scary way) about my options. |
1305. |
R.D |
London
| The need for more research and
awareness is vital. My family GP
surgery has given bad advice and
not looked at all treatment
options. This has resulted in a
close family member suffering
for the last 10 years. |
1304. |
S.S |
Sunderland
| |
1303. |
V.S |
West Sussex
| |
1302. |
A.E |
Helston
| I\'d really like to see an
alternative to \"having to have
a
hysterectomy\". Some ladies,
including me, would rather not
loose their uterus. |
1301. |
Y.A |
Milton Keynes
| I pray and hope that there will be
much research in treating fibroid. |
1300. |
E.T |
London
| |
1299. |
K.C |
Dorchester
| |
1298. |
C.C |
Derby
| |
1297. |
R |
London
| |
1296. |
J.M |
London
| |
1295. |
L.M |
Ryde
| |
1294. |
S.P |
Blackpool
| |
1293. |
M.S |
London
| |
1292. |
M |
Birmingham
| Much more research and understanding is required of the impact fibroids have on women's lives. Much more research into the part genetics play and if fibroids are hereditary and how much life style and emotions contribute. |
1291. |
C.B |
Cinderford
| An important area to research. I suffered from really heavy periods due to fibriods. I eventually got to see a specialist and had some of them removed, things are better, but I have been told they will return.Need to find a way to prevent this happening. Fibriods really affect a womens life, more research is needed. |
1290. |
S.W |
Greater London
| I was diagnosed back in the 90's.
My then GP (Birmingham) although
very sweet,was miss guided. He
said "they're small, tiny in fact and
wont cause any problem, don't
worry"
Roll forward to 2008 I had
forgotten about the Fibroids! I had
moved from my home town. I went
to new GP Practice in the Greater
London area. It took a further
2years of going back and forth
with symptoms. I was actually
laughed out of the surgery room
the first time with "So you thing
you have cancer???
(Unfortunately I had chosen the
day that Jade Goodie had past
away and the media was advising
women to go to GP's).
I told the GP at that time no I don't
think its cancer, i just know
something is not right. Things
changed when I remembered I had
a pre-existing condition. New scan
found around 5 good sized
growths; possible more but they
were unable to see fully. The only
option I was offered by my GP (no
specialist involved) was full
hysterectomy. I was 45 years at
that time and not yet found Mr
Right or had a child. They just said
'why would you want child at this
age? I felt my opinion was
truncated by the 2 GP's I saw on
later dates.
*I would like to have the GP's
educated and their bedside
manner improved.
*More options should be made
known to us!
Only through on-line research
have I found other means to treat
my fibroids. I'm now (nearly) 47
and my fibroids have recently
become very large and painful.
They're pressing on my bladder,
back and stomach….I look
pregnant! I'm fed up of the
questions and stares around my
belly. I want to have FIBROID
EMBOLISATION as I feel this would
be the best option for me…..but
will they see that??
*How do I get my options heard?
*Can I request to go to a more
sympathetic hospital/clinic? Or
even go to a different town?
(I saw on line that Birmingham
have a well established Fibroid
Clinic (private) which is also link to
one of the NHS hospitals
(Heartlands, not my fav hospital
though).
*Why are we having to 'battle' for
appropriate treatment?
Currently off-sick with severe
Fibroid associated pain. |